Chasing The Cure Live.
Location: Nationwide
Type: Docu-series
Seeking real people for “Chasing The Cure Live.” Synopsis: We are currently looking for people from all over the country who have been unable to get a diagnosis for their medical symptoms. Chasing the Cure with Ann Curry invites you to join a growing community of doctors and patients working together to help find answers to emotional, difficult, and potentially unsolvable, medical challenges.
We are tapping into the world of medical crowdsourcing, connecting doctors worldwide, online and on television, to help patients battling everything from life-threatening diseases to unusual ailments that are undiagnosed, misdiagnosed or uncured. This offers unprecedented access and opportunity for doctors around the world to collaborate cross-discipline, as well as at-home viewers.
We are currently looking for people from all over the country who have been unable to get a diagnosis for their medical symptoms; Chasing the Cure with Ann Curry invites you to join a growing community of doctors and patients working together to help find answers to emotional, difficult, and potentially unsolvable, medical challenges.
Ethnicity: All Ethnicities
Payment: Other
City or Location of call: Nationwide
Please submit to: patients@chasingthecurelive.com
This casting notice was posted by: Chasing the Cure Live
My 10 year old son was normal as can be up until 2 months ago. He is getting headaches completely leaving him paralyzed. He’s been to every doctor possible and they can not figure what is wrong with him. Every night he’s praying to GOD to give him his life back. He says his brain is on fire and he’s suffering.
Hi I have been sick for 11 years and it took me 5 yrs to get a diagnosed, but as of now there is no cure that the G.I. knows about. It is called functional abdominal pain syndrome, but there changing the name to chronic abdominal pain syndrome my intestines just cramps so severely all threw my intestinal track. From under my breast down to my pubic area and my sides and even my lower back all feels like someone kick my body with steel toe boots. Iam on heavy duty pain killers and still some days I cant get out of bed and can barely get to the bathroom with my walker. I don’t have a life it is just an existence, I also have R.A. neuropathy in both lower legs and feet. I have also circulation issues with the valves in my lower legs. I had so many cat scans and MRI’s with dye it gave me thyroid cancer so I had that remove as well as my gall bladder, I had 2 laps to look in my abdomen to try to see what is wrong , I had a hysterectomy. I am in so much pain, my abdominal area, my stomach is so puffed up its looks like I am pregnant. If not for my faith, I would have swallowed a bottle of pain meds a long time ago. I am begging you to help find out if anyone can know how to stop the cramping that is all day all night everyday PLEASE, PLEASE, PLEASE help me!
Hi Lori can you get some local raw honey that has really helped me, I got a beehive last year and I had such bad sore throats and I found it helped with so many things, it has enzymes that help with bowels, try raw garlic also.
Hello – I have a condition that has a diagnosis but I can’t get any causal or curative help. I have Granuloma Annulare. It is on my hands, arms and back. I used to be able to inject each tiny nodule with cortisone but that doesn’t work any longer and it is moving on to new places as I age. Any help would be so appreciated!
I was always extremely active, played soccer, and ran track when I was young and continued to run as an adult running 15 different marathons, 3 of them were the Boston Marathon. When I was going through a very extremely bad divorce in 2013 I noticed my legs were feeling extremely heavy. My legs weren’t cooperating with me when I would run. The faster I ran the faster my legs would feel as though I had no control of them. I was dragging them through my runs, almost falling over several times. I thought I needed to rest. I took a break from marathons. But now it’s been over 5 years since I’ve ran marathons. I can barely run now. It’s more of a walk run. My legs are extremely heavy and fatigue, super tight. I’ve gone to so many different doctors, had so many diagnosis, and nothing is getting my legs back. I’ve had hip surgery to fix FAI hip impingment thinking that would be the trick, doesn’t help, had MRIs on my lower back, and hip, also my brain to rule out MS, had blood work done to check my thyroid, nothing. I just want help. I went from a strong healthy young woman and now I feel weak. My legs. Even my arms. I’m barely making through a work out without feeling of collapsing. I’m despite. I need help. No one is listening to me or even seeming like they want to help. They just say, well that’s weird. I have Raynauds disease and asked if that would cause my fatigue and heaviness, but the doctor didn’t seem to think so. Since I turned 30 every year it’s getting worse. I’m now 36 and have fallen into a deep depression. My body has betrayed me and I don’t know how to fix this. Please help me find a cure ?
Tethered cord syndrome?
I need your help desperately, been battling illness since I was a young girl.
I’m 55 now over 21 surgeries heart stopped 5 times. That I remember. I’m 55 my grandchild is 7 only seen her 7 times in my life. Spent millions on medical Bill’s barley get by on disability. I’m aware of some of my condictions but not all so much more wrong. I just need more time so my grandchild can get to know me. Spent 12 years on the sofa crying unable to move from pain. Almost died getting off morphine. My doctor has been no help, hes actually done more harm. Please help me
Jennifer Lutz
I have a DNA protein issue causing severe muscle wasting or a form of muscular dystrophy and it just took over my body real fast in past 6yrs. I’m 41 but I kinda always new something was different with my muscles but it didn’t really hit me until recently. I was extremely active before this but slowly lost ability to ride my bikes or run my dog along with a list a mile long. It keeps getting worse and I have trouble walking now can not run one step and always feel like I’m dying inside or it feels like everyday I’m in a major car accident and my all my body parts hurt. I’m living the dream where I can’t run no more. My symptoms are are basically my muscles feel like their 110 and dying while my stomach acts like chrohns disease, full body arthritis all the time. East coast Dr do not have a clue. Traveling is hard for me I can’t fly because my equilibrium is so off I get violently sick, I have no inner outer thighs left no chest biceps or much arms left becoming bones and it hurts so much yet no one can see how bad it really is. How do I sign up to be picked.
You need to change the name of the show? Are you trying to cure people or looking for people who can’t find a diagnosis?
I was injured five years ago lifting logs for firewood. I have been in constant chronic pain so I had back surgery and had two coflex implants put in. After the surgery I have had horrible pain thru out my body. My legs, arms and face have went numb and I have lost 55 pounds. I am desperate, the surgeon says all my tests look perfect and there is nothing more he can do for me. I had lost all hope till i saw your program. I am 66 years old and would like to have some good times with my wife my daughter and my grandson before the LORD takes me home. Please contact me you could save my life.
My mom Joanne who is 61 has a rare skin disorder called scleroderma which has no cure. She’s had it for about 12 years when her life expectancy was about 2. Her body is creating a shell and because of this she constantly in pain, it’s now effecting her throat to where she can’t eat any thing without choking. Her doctors have even resorted to her giving her self a shot once a week with this “chemo” stuff that they say is supposed to help. But If she doesn’t have cancer why would she be giving herself chemo? Just a step in the right direction would be so helpful. Just Trying to keep my mom Alive.
I fell down 14 steps October 9, 2018. now I have pains in my bones, joints, swollen ankles and knees, walk with a limp, have intestinal issues, broke right wrist, then fell due to knees buckling, broke left wrist, had wrist surgery, and at same time had carpal tunnel surgery which has not recovered properly, keep going back to ortho Dr, go to occupational therapy, nothing helps, 5 months with stiff, almost paralyzed hand. I have osteoporosis, osteoarthritis. have pain in tailbone, but nothing shows up on x-rays. the numbness, tingling etc in my left hand causes mr a lot of anxiety. I cannot use that hand, so cannot drive, etc. I am a widow, have no one who understands me. I stay home every day. I have had to pay women to help me and it is so costly. I am confused, don’t know what to do except cry. lost friends and family who are fed up with my complaining. I am very sad and I worry a lot.
please help me. Lisa m. 9/13/19
My name is John trying to find help for my fiance she has had diarrhea for 10 years she’s been to so many doctors in and out of hospitals she weighs 65 lbs, she’s in bad shape and she needs some help. She’s only 30 and I’m 33 and we’ve been together for 4 years and I want her be healthy and happy again. I have kidney disease myself and I’m dealing with that and I’ve been in the hospital for around 4 weeks and I haven’t been able to be with her, we practically been together every day for the last 4 years. I miss her so much but I’m so worried for her, that she might not make it, if there’s anyone that can help please email me , and let’s get her some help, and figure out what’s wrong please.
Hi,
I have been diagnosed with fibromyalgia. But many doctors have said something else going on they just don’t know what. I have numbness, tingling, burning. All over. I have many symptoms. Seen many doctors except neurologists, who won’t see me because MRI was clean. Been sick for 3 years.
Our daughter in law is 41 years old. Has always been a go getter, always on the move, always taking care of her family and working full time. Three years ago she started getting sick. It comes and goes. It started out lasting 7-10 days, totally debilitating. 5-6 months later it would come back. Each episode was worse and lasted longer. This most recent episode is in day 52. She finally did get diagnosed at our local hospital as CVS, Cyclical Vomiting Disorder. Sounds simple right? It’s not, it renders you helpless. In constant pain, unable to function at all. After all of the admissions at our local rural hospital, they told her that there’s nothing that they could do for her and sent her home. Last week she was so bad that our son drove her to UPMC in Pittsburgh to get some help. They admitted her and she’s still there. She isn’t any better at all. I wish I could find the words to describe how terrible this very rare disorder is, it’s just so frightening to see a young healthy person go to someone who can’t get out of bed. I did find an on-line forum dedicated to this rare disorder. Please check it out, all of horrible things that a person has to go through and no help in sight. Thank you.
My name is Russell Walla, i have my best friend (Teresa Shinn) she is 44. She went through a longvabusive relationship with her ex husband! He had PTSD and did alot of horrible things to her. One of the most lasting is her current condition. She has a huge like Tumor on top of her head. If she ever hits it she begins to go into conclusions Also she will randomly have seizures, along with night terrors She went to doctors after she had a couple of sezuires and they told her there was nothing they could do. They never diagnosed her with anything, they put her on seizure meds for awhile but told her she was not epileptic. She has never gone back to try and have a doctor look at her head. She misses out on her 3 kids events in life because she goes through episodes where she “doesn’t feel well” this is usually when a seizure is coming or she will just stuttered alot and get very cold! Blankets will not get her warm and it is like bone chilling pain literally as she describes it
She has the biggest heart and would do anything for anybody at anytime. I would love for a doctor to see if they can “fix her”!!
Please consider her as a candidate for your show! Love what y’all are doing keep it up!
Suffering with severe burning of the skin that comes and goes and very widespread. It’s can last from minutes to 12 plus hours. In pain more than not. Turns tingling to numb and is the worst pain I’ve every experienced. Have had tons of bloodwork, a cat scan of my neck and seen a neurologist at the Cleveland clinic in addition to my primary. Have been prescribed multiple medications and nothing seems to help. I have no rash and because it’s invisible to the naked eye it feels like no one believes me. No one knows our body better than us. I’ve been to every er in our area only to be told that it’s “rare”. This has altered my everyday life as it’s sporadic. I’ve quit doing everything I used to do which includes cooking, cleaning, driving etc…
Please if there’s anyone who’s suffering please share. Please help me Chasing a Cure. I will be forever grateful.
Sounds like what I have, which of course I don’t know either. One dr said fibromyalgia, one said chronic pain syndrome. I’ve been given lyrica, cymbalta,gabapentin, non of that helps. I never have been a medicine taker not even Tylenol. The only thing that helped was pain medicine. All the things going on with that dr. are scared to write it. I understand why but we are suffering. Maybe they dont realize their is a disease that they haven’t diagnosed. If all these people with the same symptoms may have a common issue. Like birth control ortrauma. I was stabbed in the stomach and I have a metal plate in my ankle where I fractured it. It could be a bacteria causing this. I don’t know but i wish their was a Dr that truly cared in Alabama cause our right if they cant see it they don’t believe it. I’m only 37 been dealing with this for 10 years. Was bed ridden at one time only the pain medicine helped to me up moving working now I don’t want to go backwards. It’s not like it even cures it but lessons the pain.i wish it could be cured but I don’t think so.
I am writing this about my daughter! We are at our wits end. She is 36 years old and has been sick for the last ten years. She has two daughters who are now 8 and 11. Her problems started after she had her first daughter. It started with constant uti infections, then kidneys stones. Then she had to get stents after stone removed.. She was getting sores all over in her mouth. High blood pressure,more kidney stones. Had her second daughter and things got even worse. More ut I more stones female issues, bladder bleeding. Ended up having to have a complete hysterectomy, they couldn’t figure out why everything was so diseased. It wasn’t endometriosis. Everything kept going wrong. Family doctor said you need to go to a kidney doctor. He diagnosed her with rta type one. Put her on potassium citrate but still making stones. He told her I think you have an autoimmune disease. Had all the blood test ANA test was negative. Her family doctor said I think you have lupus. Kidney doctor said lupus gave her rta. She went to a rheumatologist he said he couldn’t help her because ANA was negative. She now has all the symptoms of lupus except ANA positive test . She has Mylar rash she gets fluid around lungs and heart, mouth sores, rashes terrible brain fog to the point she can’t get a complete sentence out. She can’t go without pain medications. Gets bladder and kidney infections all the time that has such a weird bacteria she can’t get rid of it. Her family doctor has diagnosed her with lupus but is not comfortable trying new medication like Benlasta. She does take plaquenil, gabapentin, seems like she’s always on steroids for the inflammation. Her joints are always red and inflamed. He referred her to another rheumatologist he said he was sure she had lupus and could help her blood tests came back negative so he told her he can’t help her. There has to be someone who can help figure out what is going on without steroids all the time potassium citrate and everything else she takes. She has no life she is always sick, no sleep which makes everything worse. Her girls are always sad because mom is always sick. She tries so hard to do things with her family then she pays for it later. She is always throwing up and nauseous. I would give my life to help her. What can it be? Does every lupus patient have a positive ANA test? If it’s not lupus what is it? I really hope this panel of doctors could give my daughter her life back!
Thank you
A loving mother!
Betty Hein
I have had 2 back surgeries, with laminectomies at 6 levels. I have been partially paralyzed in my lower legs from knees to toes since my last back surgery 2 years ago. I am 62 year old male Caucasian. I must use double arm canes or a wheelchair to get around. I’m only able to walk very few steps with the arm canes. I would love to be able to walk again.
My sister a little over 30 lost her ability to walk, she has been in a nursing home for rehab, and has had so many tests….Doctors honestly have no clue as to what is going on with her…her feet and legs have no feeling anymore…Please help, it’s so much more to discuss.
I’ve been sick all my life. In and out of the e.r sometimes 4 times a week.
I have chronic stomach pain and nausea and also horrible headaches that may be migraines that’ll last a couple months
I also was born unable to use the bathroom normally and no dr has figured out why…and I’ve passed it down to one of my children!
I’ve been really sick for 3 years and my whole life I’ve always dealt with some strange stomach issues. Theres way more detail to my case if someone wants to hear it.