Chasing The Cure Live.
Location: Nationwide
Type: Docu-series
Seeking real people for “Chasing The Cure Live.” Synopsis: We are currently looking for people from all over the country who have been unable to get a diagnosis for their medical symptoms. Chasing the Cure with Ann Curry invites you to join a growing community of doctors and patients working together to help find answers to emotional, difficult, and potentially unsolvable, medical challenges.
We are tapping into the world of medical crowdsourcing, connecting doctors worldwide, online and on television, to help patients battling everything from life-threatening diseases to unusual ailments that are undiagnosed, misdiagnosed or uncured. This offers unprecedented access and opportunity for doctors around the world to collaborate cross-discipline, as well as at-home viewers.
We are currently looking for people from all over the country who have been unable to get a diagnosis for their medical symptoms; Chasing the Cure with Ann Curry invites you to join a growing community of doctors and patients working together to help find answers to emotional, difficult, and potentially unsolvable, medical challenges.
Ethnicity: All Ethnicities
Payment: Other
City or Location of call: Nationwide
Please submit to: patients@chasingthecurelive.com
This casting notice was posted by: Chasing the Cure Live
For the past three years, My father has suffered a debilitating undiagnosed medical condition that results in daily acute spasmodic abdominal and dorsal nerve pain.
Initially, exploratory surgery for removal of a hernia and gall bladder was performed.
Currently he’s receiving steroid injections at the T8 and T9 vertebrae. The injections have not provided relief for him.
My Dad is an 84 year old, non drinker/non-smoker,
with a current history of diabetes, and hypertension. He practices great discipline in charting as he always monitor his BP/glucose least twice a day
I am 69 years old i have had fibermylogia for 10 years. I have this all over my body. I have pain all over and have to live with this. There is no cure once you get this. I don’t know what to do anymore please help if you can. Thank you for your time.
All symptoms are now chronic. I have burning/tingling in both arms, symmetrical. I have horizontal diplopia in right eye.( 6th Cranial Nerve Palsy ) I need to wear Prism glasses. I have tinnitis in left ear. I started with intermittent arm burning/tingling in May 2015, it is now constant. Are all symptoms related? The only tests that shows abnormal is MRI of neck and brain. I had two EMG tests both negative. The doctor said symptoms not neck related. My brain MRI (with dye) shows few hyperintentities in the periventiculars and corpus calsium area. I am 71, drs. say probably age related.
I would like to know if ” Chasing the Cure” could help me shed some light on my medical mystery.
My name is Lisa and I used to be a competent wife, mother and teacher. In 2002 I suffered from an extreme flu like illness that had me hospitalized for several days. Since then I have been suffering from debilitating headaches, body pain, memory loss, decreased capacity to think, gastrointestinal issues and emotional trauma and upheaval . I have gone to every type of doctor from neurologists and hepatologists to otolaryngologists. I spent three weeks at the Diamond Headache clinic in Chicago. Made multiple trips to both Chicago and Boston seeking medical help. I have tried many alternative and homeopathic forms of medicine form acupuncture to ayurvedic practitioners. No one has been able to treat or explain my condition. I have tried extreme diets ending up on an autoimmune protocol with no help. I can only function at a fraction of my prior abilities. I have lost my job teaching, changed my career and almost eliminated my quality of life basing all decisions on how this activity will affect me. I work and survive. Because I have an unnamed illness, I am not eligible for disability, yet I cannot work full time. I miss many activities with my family to stay in bed or avoid chemical exposures which tend to make things worse. We live on top of a Super Fund Site in Grand Island. NE which supposedly was cleaned up in one summer. An environmental doctor said my illness is connected to that but no one else can verify or figure out what to do. Please help.
I have large bumps that come up on my bottom. They appear to be some kind of cysts. I’ve been to several doctors and each one has diagnosed me with something different. Nothing they’ve prescribed to me has ever done any good. They get quite large and when they bust or leak it gets all over my pants. Would love to find a cure for this problem it’s been with me for as long as I can remember and I am now 49 years old.
I have something like that. Had since age 12. Mine was diagnosed as Hidradenitis Suppurativa. There is no cure but I did have laser done on mine and they went away. Thank goodness!
In 2002 I was treated for HCV with the ‘new cure’ Pegylated interferon with Ribavirin for one year. I have since suffered vision changes, severe recurring edema of my lower extremities, I’ve had silent heart attacks apparently and now am medicated for hypertension, I have breathing issues, I have some strange new texture of my tongue, I’m going through skin changes, loss of hair, I’ve zero energy, had five major spinal surgeries, I’m scared. my blue eyes are turning orange rapidly, I am 51 years old this all began during my interferon treatments. I was pulled off early due to complications but wasn’t told what those complications were. I feel that the only way we will ever know what was wrong with me is through my autopsy.
I have suffered from a debilitating pain in my rectum for 4 years. None of the doctors I have seen could figure it out. I, through my own research, figured out that I have Levator Ani Syndrome, which I am told is rare and not much is known about. After mentioning it to PCP he sent me to a gastroenterologist, which sent me to a colorectal surgeon. There is no cure and not a lot known about it. No pain medication has ever been able to stop the pain. They are going to do botox this month, but there are no primises that it will work and my insurance may deny. Please help me! I can’t live out my life with this kind of pain.
Sounds like the same thing I’m going through. I’ve had this pain in my rectum for over a year. I’ve had several procedures, and none worked. The botox was the worst. Severe constipation! Good luck to you.
The pain you talk about, I am sure that a doctor can give you lidocaine suppositories.
If you also have trouble having a bowel movement, it sounds like part of the rectum has necrosed. I know this was no help, but for that pain ask for lidocaine suppositories. Good luck and God bless you
Jennifer, I have pelvic floor disorder and can’t walk, bend or stoop without severe pain. I know it’s a different problem from yours, I’m just commenting because I’ve dealt with this pain since 1996 and just 2 weeks ago they did a surgery and put Botox in all of my pelvic muscles, my insurance DID cover it and it WORKED, I still have a little pain but my pain medicine is now taking care of the pain, before the Botox the pain medicine did not work. I can now deal with the little pain I have.
I’m just saying that the Botox WORKED and I’ll keep it in prayer that your insurance covers your surgery and that the Botox works for you like it did me. It’s life changing and feels wonderful not being in constant pain. Good luck, just wanted to give you hope, because it does work.
I have been diagnosed with lupus then told that was my the case. I have spent the last 7 years looking for a cure for my condition. 9 skin biopsies and multiple blood work tests. I have chronic dry skunk that causes skin sores. A red rash all over my body. I have been through all the major dermatologist in my city and left my city for additional testing. Came back with nothing new but still no cure. I also have hashimotos, endocrine disease but I have been told they are unrelated. I need help . My skin has been affecting my mental state for some time now and I’m at the point of giving up and just living with it the rest of my life . Please help me .
Sweetie,look up Lyme disease…me and most of my family have it but they don’t have proper test for it so false negative,at least answer. It has caused many other issue, diseases in my body,from Lyme
I have severe nephropathy in my left leg. I have no diabetes and have every test ran with MRI on back and doctors can not figure out why my feet hurt, burn, and have pins and needles in them all the time. Gabapentin does not work.
Hi I’m Amy weidenbacher this has been a 10yr nightmare. Please help, 24 hr nerve pain. I cant drive I can barely walk.
Please help me, the Dr. says I have lyme disease then it’s Charco Marie Tooth now was told not CMT. I would love to attend all my kids soft ball and base ball games. Cant drive at 43 going crazy. I have deformed feet. Use a walker> I also have white matter on my brain they weren’t sure why stroke so they say. I’ts been almost 10yrs, so ready for this nightmare to be over.
I am a 49 year old female who feels more like an 89 year old. When people mention to me regarding my life , my response is always the same which is , “I don’t have a life , I am just existing only and I cannot wait til the day comes that I finally just don’t wake up one day” I am not joking , I have many health issues from back pain , pinched nerve around my neck/shoulder area which I now have cervical radiculopathy because of and my arm , hand and fingers go completely numb. I have carpal tunnel syndrome. My neck has absolutely no curve at all , it is completely straight so between the pinched nerve and the debilitating Migraines , it is all so painful. I do have other health issues BUT the absolute WORST health issue I have is HASHIMOTO’S Disease and no doctor has been able to help me because they themselves do Not know how to treat it and my TSH range that is supposed to be around a .04 to around a 4.0 , …. varies from 99 to a 187 to a 294 , etc. and no one can help me. When my TSH gets so out of wack , I have been hospitalized and even after being in the hospital for 5 days , my TSH when I was admitted was a 294 and 5 days later I was a 187 and was released from the hospital. After being misdiagnosed for 11 years I did finally find out that Levothyroxine , Synthroid , etc. did Not work on me … a medication called Tirosint did but since I moved from VA to SC , and no one here has ever heard of Tirosint I just get worse each week. My vision is deteriorating , I have started to get blackouts which is new. I used to be able to get rid of my swollen ankles in 2 days but now it is taking 5 days for my feet and ankles to look normal and now my face and eyelids swell so bad it looks like I just went a couple rounds with Mike Tyson in a boxing ring. I could go on and on but I don’t know what good this is going to do or even if anything comes out of typing this. Signed, Hopeless
Have you ever been diagnosed with chiari malformation? It carries so many more issues with it, such as connective tissue disorders, and more. I know because my baby suffered since birth with pain, until she was in her teens and after a bad accident they did a spine MRI a d found this., Ask Dr if he could do a MRI to check for chiari malformation. I hope this helps.
I am 47 years old and was a healthy mother of 2. I woke up 14 years ago with a chronic cough and my life has been a nightmare ever since. I have developed a paralyzed esophagus out of nowhere causing me to live on a feeding tube. My stomach soon became paralyzed after that and I had to be fed directly into my intestines. I have recently found out I’m in intestinal failure at this time. I also deal with an undiagnosed body myositis causing severe debilitating leg pain. There are no answers as to why my body suddenly is shutting down. After 14 years of being told I am too complex a patient for anyone to diagnose. I need help to get my life back. Thank you!
There isn’t even enough of characters allowed to discribe my symptoms, hospital visits and tests I’ve been through for the past 13 years. There are many nights I just pray I wake up the next morning. I pray to just be normal just for a little while. My life has fallen apart, I’ve been homeless and penny less many times thanks to whatever is going on with my health. I can’t afford good doctors or travel to see doctors so I continue to just survive everyday. It’s a horrible nightmare I can’t wake from.
I have been unable to get diagnosed for leg pain and weakness.
My son Elijah is almost 2, he has been aspirating sense he was three months old and no one can tell us why. We have seen Gi, a pulmonologist , and without any answers. We keep getting told he will just outgrow it but my question to that is why is it happening to begin with and why is still happening? We sometimes have to supplement him with a g-tube and I’m beyond frustrated because I feel like his symptoms are being treated but he has no valid diagnosis about what’s causing them. Dysphagia without a cause just doesn’t make sense to me and I’m ready for his swallowing disorder to improve.
I have had this debilitating ringing in my ears, tinnitus for 2 years, seen many many doctors, no one can diagnose the problem. It’s just amazing how no one looks into this debilitating disease to get some kind of relief and no doctors know what causes it.
I have a condition called cvs the vomiting syndrome. At least that’s what the hospital says. I also am in tremendous pain, always noxious, have migraines, and tremendous stomach pain. I have no insurance cause thay want 1800 a month because of my health condition. I get sick at least twice a month and cant hold a job Nd social security wont help. Please I need help. Dont know how long before it takes my life.
I am a member of a group on Facebook that has a condition called Hidradenitis Suppurativa. Very few doctors know anything about it, so our treatments are few, and most of the time not helpful at all. We really need help finding relief or better yet a cure. Please consider looking into this autoimmune diseases for the 1% ( or so they say) of the world population that suffer from this debilitating disease.
My condition is so rare nobody knows what to do with me. I started this journey at 267lbs and now I’m 124lbs at 6’2 so I’m worried I’ll die from starvation (even though I eat all the time) before anyone even looks at me. My condition used to be called McDuffy syndrome and is now Hypocomplementemic Urticarial Vasculitis( HUV’s). Any help would be a blessing.
I need help. I have a number of health issues. I am 48 years old. I have had the total of 14 surgeries. I have had gall bladder, left hand, right shoulder, tubular, parcial hysterectomy, 4 right knee, left knee, 2 back, neck and had t have my bladder fixed. I have degenerative disc disease in my back and neck, severe fibromyalgia, low potassium, low blood pressure, arthritis, gastroparesis and IBS. I have been suffering for over a year now with my blood pressure bottoming out. I have passed out a number of times. I have had tons of bruises I have tore my right shoulder rotorcuff again and recently broke my left ankle because I fell out. This past Sunday it dropped when I started feeling better and was able to check it, it was 78/54. It has been lower than that. The doctor said even with chronic low blood pressure it shouldn’t get that low. All they do is get it up and release me.i am on two different medications to keep it up but it still bottoms out. Then with the gastroparesis I was told my stomach holds 66% of the food it doesn’t empty out. I was told there is a procedure there is but they can’t run any test to put me under because of my blood pressure. All this started with my blood pressure after they went in to fix my bladder. The surgery took a lot longer than they thought and had to put me on a ventilator to finish it. I am afraid one day it is going to bottom out and not come up. I take a bunch of meds. I was on methadone for 8 years for pain. Now I take Percocets for the pain. Please help or give advice.
My husband had a heart catheterization in August 2011 and due to that he has an ungodly head pain he can’t get rid of 24/7 and he cannot find any help we’ve been to Duke University Mayo Clinic MUSC nobody can find out why he’s having this head pain you are our last hope.
Hi I have a rare autoimmune disease called neurological behcets. I was paralyzed from the waist down
I’ve had perfect teeth my entire life. Over the past two years, they have begun rapidly decaying, and crumbling down to nothing. I’ve spent tens of thousands of dollars trying to fix, diagnose, find the reason and just as or more important, a solution! I never had braces, was always complimented on my smile. I don’t smile anymore. I don’t do a lot of things that I love and miss because I’m depressed and embarrassed. I’ve seen so many doctors, dentists, oral surgeons, etc., and no one can tell me why this is happening. I’m at a total loss at this point. I’m 32 and have zero answers. I just want to smile again. I want to be me again.
I’m writing for my sister she is really sick. She needs help soon . Or it’s going to be too late. If you can’t help her , can you tell me who can. She is my only real sister. There is way to much I want to tell you of what we
have been through and how devastated our family is . We have been everywhere for help . I don’t know what to do to help anymore. She has been sick for 6 years and no one has ever looked at her tailbone . She says it’s broken and her body’s not connected. She has had kidney stones for 6 yrs . She is paralyzed and has to wear a Cath and a diaper and she has colonies of bacteria from the Cath. She has very painful muscle spasms from rectum bladder all the way down to her toes. And always has problem with going, she always is in so much pain that she can t even focus to adjust to the way she has to live now she has way more things wrong with her. They said she had gillian berret. Then transverse myalitus. It is unimaginable of what has happened to Bev and all she has been through and being thrown away by everyone in our medical system .
I have lupus, arthritis, fibromyalgia, blood clotting factor, thyroid problems, can’t use my left arm dues to falling on it, copd, bakers cyst on the back of my left leg, and osteoarthritis. Please help me. I was in good shape bout seven years ago now it’s hard to even get dressed to go out. It is so depressing to have to live like this.
I had a knee replacement, got infected then they said it was cured then I got sick again. They say I have an infection yet my blood counts are fine. They don’t know why I keep haviing issues with my leg. The doctors at this point are just guessing. I would love to find out what is wrong with me. Been sick for 4 years now and no one can seem to tell me why.
Do you have breast implants?
I have been unable to find out what is going on with that body. I have had a lot of pain and have been suffering with this for years.
Cat scratch fever endocarditis bartnenalli.
I have suffered for over 25 years from what doctors say is a difficult case and no one can find relief for my pain. I’ve had 8 operations, blood and iron transfusions and live on medication that doesn’t even control my pain. I would love to be connected to a doctor who can finally shine a ray of sun on my otherwise bleak existence. Thank you.
I have been sick since 2012. I have seen over 20 doctors, I have had many diagnoses, then they would do test’s, they were all negative. I can barely walk now and I fear I will be in a wheelchair soon. I really need your help Please.
I’ve had numerous health issues and no one doctor can tell me what’s happening and if there is light at the end of the tunnel. I want to get on the show “Chasing the cure” to get someone/anyone to give me hope.
Message them at patients@chasingthecurelive.com
I hope you get on the show and find relief. Good luck.
Where do I send info for my father. He’s been sick for over 5 yrs, his liver is not working properly. His ammonia levels get extremely high because his body can’t pass it like should. It’s not caused from alcohol abuse, nor hepatitis. His doctors just say his liver isn’t functioning properly and they don’t know why. He can’t leave the house because the meds make him poop all the time to extract the ammonia. When your ammonia levels get too high it makes it like you have alzheimers.
He’s a Veteran and just seems like they put him aside.
We need answers and help please.
My husband has been having pain in his right hip going down to his knee, he had a spin simulator put in because they thought it was nerve pain ,that didn’t help he says it feels like getting zap by electricity. We have been to mayo clinic and about 5 to 7 dr. He is 62 and was in great health until about 7 years ago and it started slow. He has to walk with a cane. He takes oxycodone and slow release morphine every day. Please help.
OMG I had a spinal stimulater put place in also and it has been a nightmare, I can not wear shoes, socks, or walk. I am wheel chair bound and I am in pain 24 hr’s a day.