Chasing The Cure Live.
Location: Nationwide
Type: Docu-series
Seeking real people for “Chasing The Cure Live.” Synopsis: We are currently looking for people from all over the country who have been unable to get a diagnosis for their medical symptoms. Chasing the Cure with Ann Curry invites you to join a growing community of doctors and patients working together to help find answers to emotional, difficult, and potentially unsolvable, medical challenges.
We are tapping into the world of medical crowdsourcing, connecting doctors worldwide, online and on television, to help patients battling everything from life-threatening diseases to unusual ailments that are undiagnosed, misdiagnosed or uncured. This offers unprecedented access and opportunity for doctors around the world to collaborate cross-discipline, as well as at-home viewers.
We are currently looking for people from all over the country who have been unable to get a diagnosis for their medical symptoms; Chasing the Cure with Ann Curry invites you to join a growing community of doctors and patients working together to help find answers to emotional, difficult, and potentially unsolvable, medical challenges.
Ethnicity: All Ethnicities
Payment: Other
City or Location of call: Nationwide
Please submit to: patients@chasingthecurelive.com
This casting notice was posted by: Chasing the Cure Live
I’ve had one health issue since I was a child when my dad was alive he had to give me to doctor after doctor even after my mother passed away he flew me for two reasons to Australia one so she could help me cope with my mothers passing into to find out what this pain was when I was little the only relief I got was when he would heat up olive oil and rub my stomach with it . When it would come on with sudden I would get excruciating pain in my abdomen the whole thing and I couldn’t walk straight I have to hunch over stretching it out would be very painful it would cause me to vomit have fever sweats . I am now 42 still with no diagnosis still living through the same pain now it’s lasting anywhere from seven days to two weeks it comes and goes as he pleases and I think I would be a great candidate for the show because no one has given me a diagnosis. I’ve told many doctors many are that I believe it’s Mediterranean fever they tell me know it’s everything else like UTI bladder infection I need my gallbladder out they go in there in a little surprise my gallbladder is fine they say that I have a kidney infection and I got kidney stones eggs and surprise I don’t have either … so help me
I fractured my t8 rib four years ago. The rib healed in what’s called a malunion. The back part of my rib healed over the front part of my rib. The end of the front part is pressing up against my liver and diaphragm. I have constant pressure on my abdomen. The rib being out of place has caused me to feel like I am being twisted. It affects me from head to toe. I have seen several cardio thoracic surgeons who keep telling me the have never dealt with this type of condition. I have had numerous ct scans, had nerve blocks and the nerves being burned at t789. I feel like I am twisted. It is hard to walk. I need to find a surgeon who has seen this condition and can repair my rib.
For the last 20+ years I have lived on a daily basis with unrelenting depression/anxiety. Following a number of traumatic losses over a relatively short number of years found( as I was coming to the end of dealing with everything) myself depressed, and not “snapping” out of it. Since then I have sought various therapies i.e. ECT, cognitive, TMS etc. As well as seeing numerous doctors who prescribed numerous medications none of which has helped. I also had a genetic test done for MTHFR, and took Deplin with the hope it would help the meds. work more effectively with no success. It would mean so very much to feel like a whole human being again, and by that I mean experiencing simple Joy, Motivation, and Purpose with the years I have left. As close to hopeless as I have ever been, and when I saw an ad for the show decided to take a chance, with the hope you might be able to help me.
My son in law has a rare undiagnosed blood condition. His hemoglobin levels have dropped as low as 5 and have never been above 11. Iron infusion help to bring his levels up but they drop again. He is seeing the best hemotology doctor at the Cleveland clinic in ohio. He has had numerous scopes and colonasopy test and cannot find any bleeding. There are no visible signs for blood loss. He is extremely anemic. He’s had cancer testing and bone marrow tests no diagnosis of cancer. We are desperate to find a diagnosis or cure. He is only 38 years old is a veteran ,has children, feels hopeless and at this point cannot work. He is extremely week, exhausted and has no strength. Please help us.
My boyfriend has had severe pain on his right side since January; He’s in bed 24/7; has had the following:
Several Xrays
CT Scans with contrast
vast blood work
colonoscopy
endoscopy and all tests are negative.
Hello, Our son has been suffering for 10 years now and no one knows what is truly wrong with him. He is in the bathroom constantly vomiting and having diarrhea. He has been in to several doctors and each one diagnosed something different. He was put on meds, told it’s all in his head and so on. Our son is 28 years old with a family and I am afraid that he isn’t going to be around much longer. It is affecting him mentally and physically! We tried getting him help but, insurance continually denied tests to be done. The camera pill was denied right away for him. I’m begging and pleading with you for your help in this matter.
I’m also very I’ll and haven’t had a day without pain in over 20 years. I’m suffering! I can give up any help for me just to have my son cured. I would die for him!
Please help him!
20 year old autistic male, healthy, in college first year. Sinus infection, multiple antibiotics, starts falling, losses ability to control legs, year later in wheelchair cannot feel or move legs from hip to toes. Neurologists, rheumatoid Dr.s , many Drs but no answers. Fighting vertigo, headaches. He is now 25, still looking for answers.
Sorry Cryptogenic Cirrhosis
My name is Nicholas and I have had cryogenic cirrhosis and no dr. Can tell me how I got it. All they tell me is that it is generic from my family but nobody has ever had it. It’s very frustrating as I get really sick every 4 weeks and have to go to the emergency room. I have been in the hospital 42 times in the last 2 and a half years and seen probably 30 different GIs. They said I might have to have surgery for a transplant but because my meld score is so low I will be on the list for years. So my only options are to have a transplant and be on the horrible anti rejection drugs which I researched are awful and your on them for the rest of your life. I asked the GIs what if I get a lot healthier and get my meld score really low. Every one of them say because we don’t know how you got this disease it could come back throughout your life sometimes bad sometimes good. Any suggestions?
In reference to Lori who appeared on the August 8 episode, Has anyone considered treating her for Lupus? I have had similar symptoms for years.
I’ve been sick in and out of the hospital since I had my first son who is now 15 years old. With every pregnancy my health went downhill more. I handed up having a thyroid disorder which is what the doctor said but other symptoms that came along with it didn’t make sense and no doctor was able to diagnose my problem. I had to get my gallbladder removed then I had chronic pain for years with no answers just different medicines thrown to me that ended up making my situation worse and for the past 10 years I’ve just been going downhill physically to the point I have a hard time taking care of my children.
Now to the point after being in the hospital and almost dying that I don’t take anything anymore except my thyroid medicine in the morning and one regular Tylenol when my pain gets really bad because I’m scared I need to figure out how to help myself and at this point no doctors can I have lost trust in them.
I’ve written into so many different shows and asked for help now my teeth are starting to deteriorate due to this and throwing up for years and years didn’t help it either and not being able to eat. I know makes it worse. I’ve had a hard time eating for the past 10 years anytime. I would eat, I would always throw up so I got to the point that I just gave up on eating.
I just don’t know what to do anymore no matter what I just can’t seem to get help because I don’t have good insurance and I’m only 38 years old with three boys and I just want to be there for them. The only thing that I know for sure is I do have a thyroid disorder, it just seems like the doctors that I have seen which is a lot of them, don’t know a lot about it or they guess. I can’t keep having doctors guess and use me as a guinea pig.
I am actually writing this for my granddaughter Santana. She was born March 25th weighing only 2lbs. 1 oz. she has been at Lurie’s Children Hospital since they day she was born and has this rare medical issue known as VACTERAL. She needs heart surgery and she will need her esophagus repaired since it was not fully developed. For the past few weeks she is fighting some severe edema and her doctors are having to research on just where it is coming from and how to control it. I am hopeful that if you do a story on Santana so we might get help from other doctors or maybe other parents to have dealt with this ruthless medical issue.
About 10 years ago, I started having pain in my shoulders, hips and knees. It has progressed to my hands, feet , down my back, but my neck is in constant excruciating pain, headaches everyday from the pain in the neck. It feels like I can’t hold my head on my neck, can’t sleep a comfortable night and there is a constant clicking noise in my neck. I’ve had MRI, CT, blood work and all they can come up with is Fibromylgia, but all test show nothing. I had a fusion of the T3-4 level, with no relief. At one point I was unable to stand or walk without excruciating pain. I have no energy, brain fog and refuse to take pain medication, due to the problems associated with these drugs. I have done all holistic types of treatment, with no result. Just really want to know what is wrong with me. Some days I lay in one place unable to move due to the pain and cry, not wanting to continue. Thank you for listening to me.
This sounds like me!!!!! I thought it was lupus for the longest time (still kind of do) but all blood tests were negative, for everything, and no medications worked. At first they thought it was a B12 and D deficiency. I started supplements but the pains still came. Saw two more rheumatologist before I took plaquenil correctly, since it takes a long time to get in your system. It was the only thing that helped the pains subside, besides the help of PT for my neck.
It’s frustrating to basically live on this medication but it is a god send to the alternative. Still interment pains and still all negative blood work for any test you could think of and all organs were fine. I finally, with the fourth dr, got an MRI on my pelvis which didn’t show much but there was some “cloudiness” which lead her to believe it could be spondylo arthritis. I’ve started taking cosyntex to see if it helps “reboot” my body as it says and get rid of these lasting aches and pains.
I still am not officially diagnosed because all of my tests are still negative but I praise my last dr who actually filled in the previous drs blanks to come to this conclusion.
I too have chronic neck and shoulder pain, I get these pressure headaches if I laugh or bend over, I have ME/CFS and recently on Jen Brea’s blog she discovered that she has cranial cervical instability and now after surgery All of her symptoms of me/cfs had subsided. Would love to get to UCLA where she had it done!
I was bleeding most of blood supply out of my body back in 2013, I went to the bath room, I lost most supply. I am being treated by local hospital in Yuma Arizona. Please help, just hanging on.
My daughter Rebecca,who is 50 years old, has been suffering from what she believes is Morgellons for almost 3 years. We have gone to every type of doctor and they don’t want to acknowledge or talk about the disease. She has fibers that are on/in her body and in her hair (which she hasn’t cut in 3 years but is still growing). Strangers comment on her hair dancing! She is now seeing a holistic doctor who sees the fibers and is trying to help. The doctor is trying to detox her with diet, essential oils, acupuncture, etc. Rebecca has been on a face book page with many other sufferers and has gotten some help there. She is so frustrated and disheartened by the lack of medical help for her and all of the others that are suffering from this disease. It seems like the CDC named it and then just dropped any further studies on it. She lives in Georgia and is available for anyone who will look at her and hopefully help. Thank you, Dorothy
I’m replying to you because my sister is ready to just give up and die. She also was given the run around, no doctors would even admit they see them. They look like springtails, she sees them every where even around her sink. We also live in Alabama, not far from you. It’s in our water, I know this. I can suggest something to you, my sister has me ordering her some FOOD GRADE HYDROGEN PEROXIDE, you have to look up how many drops to use at a time, but with my sisters, she says they hate hydrogen peroxide, so I thought we need to kill them from inside out. Think about it,there doesn’t look to be anyone addressing these, so many people have them and are suicidal. I think this is better than the alternative!! Personally I think these things are some type of bio warfare, it’s here now and nobody want to touch it
I have a lady friend, who has been diagnosed with lympodima(sp). Four years ago, she could walk and go out and do everything. Now she is in a nursing home or she gets to go home and is home and bed bound. She has a great outlook, but her husband and friends feel very helpless. Please help.
I have spent 14 years in chronic pain. The pain has come with chronic kidney stones as well. The chronic calcium oxalate kidney stones run in the family and no one knows how to cure the stones or the pain. I have been to over 4 urologists, 2 nephrologists, 2 endocrinologist with no permanent fix. While some might say we can cut out your kidneys, I believe having them may be a good idea. (Sarcasm). I have had god knows how many x-rays, cat scans, and ultrasounds. It affects my life constantly and makes it hard to live a life holding a job. Finding a cure would do wonders for my life because I have to constantly be on pain meds and that’s not living.
I have had every test known to man and blood work, I suffer from lightheadedness daily. They sinus test says no polyps, kidneys fine, cat scan fine, BP good, heart mild regurgitation, diabetic negative, living in a fog yes . Antibiotics too many times. Sleep never, eats fine. Why Why am I dizzy daily. Missed so much work due to ligheadness. Take vitamins, just want an answer and be able to live a normal life, I don’t go anywhere to dizzy.
Have stomach problem doctors at VA hospital can’t find out why I have ‘this pain in my stomach it been more than 8 years
I’m a 58-year-old male that was diagnosed with Hep C, I did treatments over a year and a half with Pegintron, ribaviren and uncivil. After these medications wiped out my immune system it actually destroyed my immune system. My auto immune system now attacks my muscles as I grow weaker by the day I am now in a chair to get around I’ve been listed as having inclusion body myositis and told there is no cure my muscles are so weak I now have an ostomy bag and wear a brace on my left foot. I’ve been treated with steroids which now has turned me into a type two diabetic which I have to take two kinds of insulin and Trulicity. If it weren’t for my wife I’d be dead by now. I’m looking for anyone that can help me to get my immune system back on track.
Last year I was diagnosed with Graves’ disease. I did the iodine radiation pill and went into a hypo state. Eventually dr. somewhat was able to get me stabilized. Shortly there after I was diagnosed with an autoimmune Sjogrens.
I was put on prednisones and ultimately clap with nail and the thyroid medication ..
It’s been a little over a year and I am in constant pain. Sometimes information in different areas, one I will swell completely closed or the other, joints feel like they are aching to the bone, one eye is just a little bit larger than the other but they said has nothing to do with the graves. Most recent, I feel dizzy and behind my eyes and my brain feels like it’s floating/dizzy Then comes the fatigue where I literally have to lay down. After sitting for a few minutes, I attempt to stand and walk and my hips ache so bad that it takes me a few moments of moving and one location to start walking.
Although I’ve been diagnosed with these two illnesses I can’t help but feel there is more going on. Doctor said they’re doing all that they can, that my blood work comes back normal status, and there’s nothing more they can do for me. Obviously no one knows where or what the auto immune is from (How you get it or for that matter Graves.
A little over a year ago I was on top of the world. Traveling abroad, traveling in general for work. And doing so was able to move and travel abroad easily. Could run a marathon.
Today in the last year,
I am extremely tired of feeling tired, in pain, fatigue, depressed, dizzy, and hopeless. Please help
I just saw the commercial. I wish I knew of this show sooner. My life has change ever since I’ve been dealing with ongoing vertigo it’s been pure hell. I’ve been to many doctors and nothing has been resolved. Now my white blood count is high and i have some weird anemia thing going on . Still no solution to anything just bouncing from doctor to doctor. My life seems to be confined to my house. I’m scared I might fall. Taken dizzy pills, exercises and NOTHING. I don’t know what else to try, just want my life back. I wish someone would see me and tell me what is going on that none of these doctors are picking up.
I’ve been dealing with my chest pain for over 15 yrs which has nothing to do with my heart. It appeared one day and it has stayed with me that long. I have been a guinea pig for doctor’s ever since. I’ll watch your show in the hope of maybe there is an answer to my painful depression. Looking forward of finding the truth.
I have an incurable autoimmune disease called small fiber neuropathy. The coating around all the nerves of my skin is disappearing leaving my nerves in my skin exposed and eventually dying. I have it from head to toe and every year it gets so much worse. Just a simple touch could cause severe burning sensations. There is nothing for my drs to do except make me as comfortable as possible. What I’m wondering is, why does there have to be a reward if the drs find a cure? Also with me being on disability how would someone like me ever be able to offer a reward? Does this show only cater people who have money and are well off? Seems a little unfair. Just wondering how this whole show production works
My son has been pretty sick An home bound for 2 years. He had his tonsils removed and shortly after he started getting dizzy and chronic pain in his stomach and his lower back and has a 27 month chronic headache that never goes away. Most food hurt him to eat an the lower back pain stops him from school an sports. He turns 13 on July 18th 2019… would live answers as to why he hurts An is dizzy an always tired An his heart rate always goes crazy. Would love for him to get back in school an start being a teenager again. He was a normal kiddo before all this, no health issues, plays football and baseball since he was 4, we traveled with select baseball to bring home bound an drs just keep passing him off. He’s had 5 lumbar punctures, two myelograms, 5 mris, 2 cat scans, 1 colonoscopy an 2 upper gi scopes and still suffers with no answers. What I would give to help my son!
My mother has gone blind and she was told that nothing can be done that she is only 3 in the world that has this rare retinal disease, please help us. Shes never seen her grand kids, I’m worried about her as she lost all her spirit and all she does is sit and cry, desperate in Oregon, Ronda P.
Please help or friend. She is in Norman regional in Norman Oklahoma. Her brain is bleeding, they can’t stop it. Don’t know what’s even causing it! She is dying rapidly. Her liver is failing, her blood is septic, she really needs help and soon. PLEASE HELP HER!
I was diagnosed with Fibromyalgia over 31 years ago. Since then, I’ve been diagnosed with bilateral greater trochanter bursitis, bilateral sciatica, Degenerative Facet Joint Disease. These disorders and diseases have made my life extremely difficult. Moving is very painful
I am 36 year old male. I have hypokalemic periodic paralysis. I have been misdiagnosed over 15 times. Usually people with this disease end up in a wheelchair at an early age. If I eat carbs, workout, or have a fan/air conditioning blowing on me, I will wake up paralyzed. I won’t be able to roll over in bed. I won’t able to lift my arm. I won’t be able to cough because my muscles won’t work. It can last hours to days. It’s hereditary. I have 2 kids and don’t want them to suffer through this, along with others with this disease. We need a cure.
I have a rare skin disorder called purigio nodularis. Most people including doctors have never even heard of it. It is a very painful disorder. It itches to the bone(it feels like). It stings. It causes you to break out with sores all over your body that are extra painful. No one knows how you get it and it’s not curable. It is not contagious but it is not curable. When the sores get to a certain stage you have to pick them. You do this without knowing it. Every one thinks the sores are from drug use. I do not do drugs not even weed. It is embarrassing to go any where in public because I am covered with sores and scars. I hope you can help me. It is hard not to commit suicide when it gets so painful. Thank you, Marilyn hull.